From

Isolation

to Inclusion

for MDVI Children

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Muskan Foundation for People with Multiple disabilities provide children with multiple disabilities and vision impairment with special education and therapy

so they can participate in, and be recognised by, their families and communities - realising their own unique abilities in life!

In India, children with Multiple Disabilities & Vision Impairment (MDVI) and their families face a life of isolation, stigma and exclusion. India’s existing healthcare and education systems cannot accommodate the unique needs of children with MDVI, therefore they languish and live a life of unfulfilled potential.

Recognising the glaring gaps in the sector and the desperate needs of MDVI Children, nationally renowned Low Vision Consultant,

Dipti Gandhi, founded Muskan in 2007

to provide a one-stop-shop for MDVI children and their families living in Mumbai.

Muskan’s Centres of Joy

Muskan operates

6 MDVI CENTRES IN MUMBAI

They are happy, vibrant, loving spaces for MDVI children to learn, grown and thrive. Under one roof, we provide special education and multiple therapies.

Bai Jerbai Wadia Hospital for Children (Parel)

Hume School (Byculla)

Bandra East

Goregaon West

MGM hospital (Panvel )

Kalyan

Bai Jerbai Wadia Hospital for Children (Parel)

Bandra East

MGM hospital (Panvel )

Hume School (Byculla)

Goregaon West

Kalyan

Special
Education

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Multiple
Therapies

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Pathways to
Vocational Training

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Special
Education

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Multiple
Therapies

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Pathways to
Vocational Training

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Parent Empowerment
and Support

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Parent Empowerment
and Support

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Advocacy &
Training

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Capacity
Building

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Special
Education

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Early
Intervention

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Multiple
Therapies

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Pathways to
Vocational Training

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Parent Empowerment
and Support

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Advocacy &
Training

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The

Magic

of Muskan

Our Impact

0 children with MDVI

rehabilitated equivalent to educating over

0

without disabilities

0 parents

empowered to fully support their MDVI children

0 Special Educators Trained
0 awareness sessions

conducted at schools, colleges and corporate houses, reaching over

0 people

without disabilities

Our Children

Need your Help

Child & Event Sponsorship

Sponsor the Special Education or Therapy Costs of a child. Provide sponsorship of centre events such as Annual Day, Festivals and Picnics for our Students.

MDVI Centre Grant

Help us establish a new centre and its programs; or support an existing centre by helping with our infrastructure and funding for programs.

Training & Advocacy Grants

Help us educate people on MDVI by supporting sensitisation programs at schools, corporates and colleges; or help fund a training course.

Contribute to the Corpus

Help us build a Rs.2 Crore Corpus Fund to support our long-term sustainability and growth.

COVID-19 Response

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Accreditations

Muskan Foundation is accredited by the below establishments, keeping in view the work that we are doing in the field of education, therapy, counselling and intervention for MDVI children.

Credibility Alliance

Credibility Alliance is a consortium of Voluntary Organizations (VOs) committed towards enhancing Accountability and Transparency in the Voluntary Sector through good Governance.

Credibility Alliance

Credibility Alliance is a consortium of Voluntary Organizations (VOs) committed towards enhancing Accountability and Transparency in the Voluntary Sector through good Governance.

Sense International India

Also known as Sense India, they support and advocate for better services for deafblind children and adults across India and partner with NGOs and the government to provide them with care and education.

Sense International India

Also known as Sense India, they support and advocate for better services for deafblind children and adults across India and partner with NGOs and the government to provide them with care and education.

Perkins India

Perkins India is a national resource and training center for children with vision impairment and multiple disabilities (VIMD), including deafblindness. Perkins International of Perkins School for the Blind, USA and was set up as an informal Task Force of experts in the year 2002.

Perkins India

Perkins India is a national resource and training center for children with vision impairment and multiple disabilities (VIMD), including deafblindness. Perkins International of Perkins School for the Blind, USA and was set up as an informal Task Force of experts in the year 2002.

ATMA

A movement of thinkers and doers; entrepreneurial and change minded organizational consultants working for the cause of education with a professional background in business or education.

ATMA

A movement of thinkers and doers; entrepreneurial and change minded organizational consultants working for the cause of education with a professional background in business or education.

GuideStar India

For latest updates, financials and documents, please visit our profile on GuideStar India.
Visit Profile

GuideStar India

For latest updates, financials and documents, please visit our profile on GuideStar India.

CAF

CAF exist to make giving go further, so together they can transform more lives and communities around the world. They’re a charity, bank and a champion for better giving, and for over 90 years they’ve been helping donors, companies and charities make a bigger impact. Their independence, expertise and reach mean they’re uniquely placed to do this.

CAF

CAF exist to make giving go further, so together they can transform more lives and communities around the world. They’re a charity, bank and a champion for better giving, and for over 90 years they’ve been helping donors, companies and charities make a bigger impact. Their independence, expertise and reach mean they’re uniquely placed to do this.

Muskan

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Counselling

Counseling at Muskan Foundation for people with multiple disabilities serves as a compassionate and supportive resource for parents. It provides a safe space for them to express concerns, seek guidance, and gain insights into understanding and nurturing their child's unique needs. Counseling is imperative in fostering emotional well-being, enhancing communication, and empowering parents with effective strategies to navigate the challenges associated with raising a child with multiple disabilities. It plays a crucial role in building a strong support system, promoting resilience, and ensuring a holistic approach to the overall development and happiness of both the child and their family.

Credila The Education Loan Specialist

Special education is empowering the child him to write the letters I to F independently with minimal prompts.

Sahil Zubair Shaikh (Name Change), a 6-year-old with multiple disabilities, has made significant progress in writing letters I to F over the month. Initially, he could identify the letters but required verbal prompts and hand-over-hand (HOH) assistance to write them. By the end of the month, with the use of various materials such as sand, stencils, worksheets, and books, Sahil's attention and writing skills have improved. He is now able to write the letters I to F ( in HWT method) with minimal verbal prompts, demonstrating notable advancement in his writing abilities.

Tribhovandas Bhimji Zaveri TBZ

In Special Education, we are working on his prewriting skills.

Nikhil (Name changed), a 6-year-old with Autism Spectrum Disorder. We have been focusing on his pre-writing skills in his Special Education program. When he joined, he could hold a crayon but struggled to apply accurate pressure and motion to scribble on paper. In the first few sessions, he successfully grasped the crayon with his dominant hand. Later with the teacher's physical and verbal assistance, he began to scribble on paper, creating wide circles. He demonstrated further progress by holding the crayon independently and making smaller circles and more uniform lines, needing only minimal verbal prompts from the teacher.

ACG Cares Foundation

In the communication enhancement program, we are helping the child improve sound imitation, follow instructions, and enhance social interactions.

Aakash (Name changed), a 5-year-old with Autism Spectrum Disorder, we have been working on improving his ability to follow instructions, sound imitation, and oromotor functions .Initially, he struggled with sound imitation and preferred interacting only with his parents. However, through regular speech therapy, he has shown improvement in sound imitation, social interactions, and following simple commands. To further support his development, parents are advised to encourage him to spend time with his grandparents and play with peers, fostering social and expressive communication skills. Engaging in activities like with beading and playing with blocks can also help him understand commands, while blowing activities have enhanced his oromotor functions. Overall he is showing improvement in communication, socialisation, and sound production.

Mother-Toddler Program

Raj suffered from a brain injury which caused him to become deafblind. When his mother brought Raj to Muskan, she was very worried as Raj being six months old, was not able to bond or respond to her. Raj being a child with deaf-blindness is both visually and hearing impaired. However, Raj has some Residual sight that his teacher made maximum use of by teaching him through sensory activities like touch, smell, and taste.

In one of the activities of the Mother Toddler group, the teacher was singing a song and suddenly he was doing an action that had been taught to him earlier. We are very happy with the progress as he is responding very well and soon he will be advance from the Mother Toddler program to early intervention at Muskan.

Her mother was lost before she came to Muskan, as her child cannot speak nor hear properly. She didn't know how to communicate with the child, how to teach him things. It the mother's responsibility to teach her child and impart her child with knowledge that she has received. However a mother of a child with disability, she was in a pickle as she herself did not have the right knowledge about how to teach her child. Her earlier learnings become redundant as she has not been taught how to deal with a child who is both deaf and blind.

In the Muskan’s Mother Toddler program, we follow a holistic approach where we teach the mother about the disability of her child and the techniques and strategies to deal with her child. The most crucial stage of the development of the brain is between 0-2 years and in Muskan's mother toddler program we take full advantage of it by using a combination of techniques to teach both the Child and the mother.

If Raj had not received the early intervention in Muskan, he would have developed self-stimulating behavior which would have been detrimental to his later learning. He is understanding the world and responding to things that otherwise he would not have responded.

Looking at Raj's progress, her mother insists on the importance of early intervention. She now assures newly enrolled parents about the importance of timely and regular intervention at Muskan.

Her mother says she feels empowered in teaching her child and has become an unspoken ambassador for Muskan's Mother Toddler program.

Early Intervention

Rachel (name changed), is a child with autism and completely blind, came to Muskan for admission when she was hardly two years old. However, at that time her parents were sceptical and didn't admit Rachel at Muskan. After four years, Rachel's speech therapist once again referred her to Muskan. Rachel’s situation was challenging as children with autism are visual learners. When a child can’t see, the next sense we can depend upon to teach them, is touch. However in Rachel's case, she had tactile dysfunction which meant her senses were heightened to the point of discomfort or even pain. As such, Rachel couldn't perform any activity independently, she could only stand and go round in circles. At Muskan, Rachel receives occupational therapy, physiotherapy, speech therapy, and special education. The combination of therapies and special education has given Rachel the right direction to explore things with her hands and she can even understand the characteristics of objects. With the intervention Rachel receives at Muskan, the integration in her brain which earlier was not happening, is now functioning. After early intervention at Muskan, Rachel can walk on a balance beam, taking the instructions of teachers independently. Where previously she couldn’t understand basic functions, within four months we could see amazing progress. Today she can communicate not only with her mother but she can also follow her teachers' instructions accurately. She has even made a friend at Muskan and has started participating with her in games and activities. Her mother is very happy that she is getting all the therapies under one roof and she can see the real difference in her child. Her mother says, "In hindsight, I should have admitted Rachel much earlier, as an earlier intervention would have had a greater effect on her progress - but better late than never.”

Vision Therapy Enables Mainstream Education

Neeta (name changed) being born prematurely lost most of her vision. Her doctor referred Neeta to Muskan, where we started her vision therapy. At Muskan, a customized program is designed to improve visual skills. With rigorous vision therapy, Neeta's movement of eye and vision perception developed. Gradually she started recognizing objects and her range of vision also increased. We realized that Neeta has good cognition and can be mainstreamed into regular school. When Neeta was admitted into a regular school, she was not able to cope up with other children. Her teacher was not able to understand why Neeta cannot read and write like other children. When Neeta's mother conveyed the problem to Muskan, we designed techniques in her vision therapy to teach her reading and writing.

We saw amazing results as Neeta started reading and writing and was even able to do maths. For a year, Neeta was doing parallel instruction where she would learn both at her Regular school and the school at Muskan. Due to her tremendous progress, we were able to mainstream her into regular school. Today Neeta has become fully independent and, we are constantly in touch with her giving her new strategies to improve her vision.

Speech Therapy / Communication Enhancement Program Provides Future for Twin

When Deena and Diana came to Muskan they could not swallow nor make any noise to communicate with their mother. Born prematurely, Deena and Diana are twins whose father is a daily wage labourer and the mother is a housewife. When we advised their mother to admit Deena and Diana to Muskan, she was very anxious. As her husband is a daily wage laborer, even with fee concession they could not afford to send their twins to Muskan. They cannot afford to spend money even on travel. However, we realized that Deena and Diana needed Speech Therapy for their survival and development. Hence we gave them travel conveyance along with concession of fees so that Deena and Diana can be avail speech therapy and special education at Muskan.

Initially, we started working on the development of Oro motor skills which means to develop muscle inside the mouth so that they can swallow. Our Speech therapist gave them a home program where we gave them a toothbrush to sensitize the mouth. We are at the augmentative communication stage where we teach speech using pictures, sign language, and other methods. Today Deena and Diana can understand objects, alphabets and even understand words via pictures. Reaching the augmentative communication stage was important as the next step is the development of speech. We are eager to hear the first words of our twins and we are sure with Speech Therapy we will hear them soon.

Physiotherapy Enables Movement for Michael

John (name changed) is a child of intellectual impairment with low vision impairment and locomotive disability. John’s disabilities were so challenging that he required multiple therapies at the same time. His parents used to shuffle from one therapist to the other which placed severe financial stress on the parents. John was referred to Muskan by a hospital. Since John belong from low-income group, his parents couldn't afford the fees, therefore we enrolled him in our sponsorship program where his education and his therapies are sponsored by SBI Life Insurance. At Muskan, John’s needs were meet, wherein he received all the therapies under one roof. The combination of therapies and special education has positively impacted John’s development. Today he can sit and can use his hands independently. This was only possible due to the partnership of SBI Life Insurance with Muskan Foundation. By Supporting Muskan’s center at Goregaon, SBI Life is giving new lease of lives to children like John who weren’t able to access right opportunities.

Occupational Therapy Helps with Daily Living

Sameer (name changed) is a child of slow learner with vision impairment. Sameer’s developments’ is significantly slower than his peers. He also requires vision therapies in order to develop his vision. As this is a very challenging combination of disabilities, no school was ready to accept Sameer as they said they cannot teach him. Sameer was referred to Muskan Foundation by BJ Wadia Hospital. In Muskan, Sameer received special education wherein an Individualised Education plan was created by our Multidisciplinary team based on his needs. He is also receiving vision therapy which aided him to develop his ability to read and write. Due to the combination of therapy and special education, Sameer is growing positively in Muskan Foundation. He can read, write and also solve math problems. He is an enthusiastic child who loves to participates in all activities. When his father saw Sameer read for the first time, he was in tears as he never thought his child will be able to read after receiving so many rejections. We are grateful to Dalal Family Foundation who have been instrumental in supporting Special Education and Vision Rehabilitation Program at Muskan’s center in BJ Wadia Hospital. Sameer is growing positively and he will soon appear for Open schooling examination which is one step closer to Sameer completing his high school education.